President returns thalassemia bill amendment for further review

President Dr. Mohamed Muizzu has opted not to ratify an amendment to the Thalassemia Control Act, sending it back to parliament on Wednesay for additional revisions.

The proposed amendment sought to mandate a special program for thalassemia carriers before marriage.

The amendment, initially introduced on June 23rd, received parliamentary approval on August 6th. However, the President's Office stated that the bill was returned following suggestions from the Maldivian Blood Services, as well as thalassemia carriers and their families. These suggestions aimed to refine the bill further.

The President's decision reflects a commitment to ensuring the law's objectives are fully met and that thalassemia services are provided through a comprehensive national system. The current legislation does not require individuals at risk of having children with thalassemia to complete a pre-marital program.

The amendment, put forth by PNC MP Ahmed Naseer on behalf of the government, proposed an addition to Article 11 of the Thalassemia Control Act. This addition outlined several key requirements:

• Couples intending to marry would need to apply for permission to the marriage registrar, submitting thalassemia test results.

• If test results indicate a risk of thalassemic children, the marriage would only be permitted after the couple completes a program designed to meet regulatory requirements.

• The article would also specify who must complete this program and its components.

Furthermore, the bill detailed the appointment and responsibilities of the Director General of the Thalassemia Centre. This position would be filled by the Civil Service Commission, under the Health Minister's guidance, for a five-year term. The bill also emphasized the accountability of the Director General and their obligation to work with the Minister's advice.

Strengthening and expanding services for thalassemia patients remains a significant pledge of the President's administration.